Introduction: Early intervention conceived as a program for young infants and toddlers
with developmental needs and their families, how early intervention practice establishes
family participation in the service process - from referral, evaluation, Individualized Family
Service Plan (IFSP) meeting, to service delivery - was considered in this article. Employing
disability studies perspectives, the study contends that although families have gained
legal rights for family participation in the law, the requirements do not guarantee the
quality of family participation. Using a qualitative case study approach, this study looked
at both participation and perceptions of families in the early intervention service process
in the metropolitan area of the US.
Case description: Three families’ experience in the process of early intervention was
observed, and how these parents reflect on their participation in the development of early
intervention service planning and delivery was examined through in-depth interviews.
Discussion and evaluation: Findings showed that the families’ participation varied by
service providers. The disparity resulted from variable availability, competency levels, and
approaches of individual service providers during the service process. In addition, early
intervention professionals who are bounded by the requirements in a professional
bureaucracy, including the procedural requirements, often impinge on the quality of
family participation and limit families’ opportunities for quality service provision.
Conclusions: The paper suggests rethinking about how the practice can be implemented.